Summer Cycle Trek – Update

June 6th, 2014 No comments

Monday June 2nd, 2014 and an update from Iddy…

“225 miles through Strathclyde, Stirlingshire,  Perth & Kinross and the Highlands– done!! In 2 days!! Will send you full details when fully recovered but now… bed.”

Charity Skydive

May 31st, 2014 No comments

Annette Chrisp and her friend Julia Heppell who work for Durham County Council have raised over £630 by doing a skydive at Peterlee Airport, and by having a sponsored “Dress down day” and a cake and book stall at their office. They started their sky drive training in October 2013, but the miserable weather conditions delayed their jump. Below is Annette’s reply when I asked her how it went.

 

“The jump was amazing – Julia wasn’t scared one little bit – you would think she was going on a bus trip to Durham, rather than throwing herself out of a plane, me on the other hand was a little nervous.  We managed to get it done during the Easter weekend. It wasn’t planned but we managed to chance our luck and jumped about 7.00 at night.  I would do it again, in a heartbeat!”

Well done and a big thank you to Annette and Julia from everyone at the Trust

Summer Cycle Trek – Prologue

May 18th, 2014 No comments

Another piece of fundraising happening this summer is a cycle trek from Glasgow to Inverness by Idris Wilson and Garry Ferguson.

My name is Idris Wilson, I’m 29 years old and I’m a staff nurse in North Tyneside General Hospital.

I was slow to starting cycling, I didn’t learn until I was 13 and then I only bothered to actually ride a bike a handful of times. When I originally moved back to my native North East in 2011, (I have been living in the other home nations since I was 3) I was relying on public transport to get to and from work as my wife uses the car for her job.

At the start this was easy because Arriva provided a pretty decent service. I could get a bus from my doorstep to the hospital doorstep. Then they scaled back the service so that I had to walk to Burradon, (I live in Dudley,) to get the bus. They again scaled it back further so I had to walk to Burradon and then walk from New York!! To add to this they made the bus later so that I was going to start being late for every shift. The final nail in the coffin was when one of the buses just completely ignored me and drove past the bus stop despite me waving it down.

I decided to get a bike through the cycle scheme at work.

At first it was hard work, having not really ever cycled and not being able to run for a good few months. I injured my knee in the April and this was October, my fitness levels were terrible but I persevered. A good friend of mine Kyle Solway had been cycling for a couple of years and maintained I would enjoy it. He came to visit in the February and we went on a cycle round Newcastle and decided that we should do the Glasgow to Inverness cycle in the summer. We also decided to enlist another good friend Garry Ferguson for this. Unfortunately Kyle is now unable to make the cycle due to other commitments but myself and Garry decided to continue with the idea…

We’ll be posting more information along with regular updates from the trip. Until then you can see the route being taken here

http://www.theguardian.com/travel/interactive/2012/may/05/glasgow-to-inverness-route-map

The Dryathlon

May 18th, 2014 No comments

Howard Smith contacted us about a fundraising effort by his brother and
friends for our charity.
We are very grateful for their support and their donation, and delighted
that the event has increased their fitness and prompted them to continue
with their exercise.
Well done from all of us.

Howards letter:

My brother Malcolm hearing of the ‘Cancer’ event in late December wanted
to do something for myself with MND. He got the idea to have a
‘Dryathlon’ for the month of January. So he arranged with his cohort of
drinkers to take part. They stopped drinking at midnight on the 1st
January 2014, through till midnight on the 1st February. Throughout the
month they did cycle rides, swimming events and anything else that was
suggested.
They raised £790.00, and given the £187.50 for Gift Aid results in a
total of £977.50 for MND.
However, there has been a bi-product, as my brother and friends now
cycle each week, which is good for their health, this being very important.

Drop in Centre – Christmas Break

December 9th, 2013 No comments

Merry Christmas  from the NEMNDT!

The final weekly drop in centre of the year at The Chase Park Health club will be this coming Thursday (12th December). The drop in centre will start up again on Thursday 9th January but we can be contacted through our website or helpline if anyone needs help or advice.

Until then from all of the trustees, we hope you have a lovely Christmas and a look forward to seeing everyone in the New Year.

Mary’s Story

April 23rd, 2013 No comments

 

“I was diagnosed with Motor Neurone Disease, a neurological progressive disease for which there is no cure, in 2010.

A year later following yet another fall, this time resulting in a fractured elbow, I was in the depths of despair, crying every waking hour and also well into the night.
I didn’t understand what was happening to me, but I knew that I was getting weaker and time was running out, and there was nobody, or anything out there to help me. I was alone.

 In May 2011 my husband Michael wheeled me into Whickham Villa Health Club now known as  Keiro Healthcare. Christine the manageress introduced me to my saviours, the North East Motor Neurone Disease Trust, a small group of dedicated wonderful caring people who had been or were affected by MND.

 They have formed their charity to help people and families in the North East affected by MND. They use the health club as a drop in centre for their support group. Through the Trust I was given immediate access to the facilities at Keiro, i.e. the fabulous hydrotherapy pool, and the gym. Their help didn’t stop there – they arranged for me to have an assessment from Neural Pathways, a team of professional physiotherapists who specialise in neurological disorders, who devised a range of exercises for me. The aim of the exercises is to maintain the muscle activity that I have. As well as working in the community Neural Pathways physiotherapists work at Keiro. The NEMNDT funded my assessment and treatment with Neural Pathways until funding was approved through my local PCT. The Trust also paid for any holistic treatment that I felt would be of benefit to my well being.

Two years down the line my life has turned around. The progression of my disease is slow, which I believe is down to using the hydrotherapy pool twice a week, combined with exercise in the gym. I have even increased my muscle bulk. I no longer use my wheelchair I walk with the aid of a stick and holding my husband’s hand. Life is good.

Following my diagnosis a former consultant neurologist said to me “I hope that you find what you’re looking for.” My answer YES I HAVE Dr Young”   Thank you NEMNDT and Thank you Keiro Healthcare

I know that this is not a cure, but mentally I have improved 100% and I can honestly say I’m not dying of MND, I’m living with it.”

Our Inspiration

April 2nd, 2013 No comments

Alistair Purple

In 2004, having been recently diagnosed, Alastair was visiting relatives in Australia with Sue when they spotted a shop in Melbourne being use as a Drop- in centre for people living with Motor Neurone Disease. Of course they went in and were so impressed that when they came home Alastair couldn’t wait to make a start on a drop-in centre in the North East. He was so full of enthusiasm and had soon convinced enough of his friends to help and give it a try.

This was the start of THE NORTH EAST MOTOR NEURONE DISEASE TRUST.

From lowly beginnings at Kenton Community Centre we now use the facilities at Chase Park Neuro Centre, Health Club and coffee shop, with access to hydro- pool, physiotherapy, gym and beauty treatments.

As long as he was able Alastair worked tirelessly organising fundraising and social events, with Sue by his side.

In August 2012 Alastair lost his fight with MND but the charity lives on in memory of him.

God Bless, Alastair

2012 is upon us…

February 19th, 2012 No comments

It’s been a while since our last update but the work of the North East Motor Neurone Disease Trust has continued throughout the end of 2011 and the start of 2012.

The drop in centre is on every Thursday, 12:00pm until 2:00pm and we’re also still on hand for any help or advice via our helpline or email. We are also still providing information on services that may be useful to MND sufferers:

World First offer travel insurance for people with pre-existing medical conditions including MND. Their website is www.world-first.co.uk or you can contact them on 0845 9080161

British Gas also offer a special unbeatable tariff for anyone with a terminal illness. They don’t advertise the rate but it does exist. For more information, contact British Gas directly.

A Message from Mary

June 19th, 2011 No comments

We recently received this email  from Mary, one of the people the trust was set up to give help and support to:

Dear Pauline
Thank you for the link I enjoyed watching the videos.
I have also been on the MND trust website and read all about the remarkable work that you do.  I did enjoy my treatment on Thursday. Sheila put me completely at ease. she was lovely.  Now I am looking forward to my  physio starting.
I am hoping that it will make me stronger, as these last few weeks have seen me getting weaker. I feel very lucky and privileged to have met such caring people as yourselves. I look forward to seeing you on Thursday.
Thank you again

Mary

The videos she mentions can be found here:

http://www.whickhamvilla.co.uk/whickham-villa/videos

A little bit about the Trustees…

March 21st, 2011 No comments

Did you know that we have a very arty and creative group of trustees in the NEMNDT? Sue makes brilliant designer handbags and hats that are individual and chic whilst Bill produces stunning Rene Mackintosh style leaded glass pictures. We also have Morag who makes the most beautiful home made cards and quilts and finally Pauline who hand crafts stylish and unique jewellery.

Sue and Pauline sell some of the things they make on the first Saturday of every month at the Craft Fair in the Masonic hall in Chester-le-Street, 10am-2pm. Come along and see if there is anything you fancy, profits go towards helping our trust provide the best care possible for MND sufferers and their carers in the North East.